God’s Gift

In the living room at his home, Brycen inhales a fine mist of medication from a tube. His mother is administering one of six daily nebulizer treatments to help battle the constant upper-respiratory infections he suffers from. Apert syndrome affects about one in every 100,000 babies. A child with the condition has a premature fusion of the plates in the skull, restricting brain growth and causing increased pressure in the brain as it grows. The head appears larger than other children’s and the midface appears sunken. Apert’s children also have fused fingers and toes, which can be corrected with surgery.

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